|It's like she just realized at that moment her hair was gone.|
Clara had an MRI this morning. Finally, this evening her doctors came by to visit about the results. It is still unchanged since the MRI last week. What we know is she has lost the vision in her right eye; may be temporary, may be permanent. The tumor is intertwined around her optical nerve and is compressing more on her right eye nerve than her left eye. In an effort to stop more internal growth within that tumor (which may explain the loss of vision all of a sudden) they are going to start chemotherapy tomorrow instead of Friday. Surgery and radiation they believe would be too risky at this point. The HOPE is that the tumor will shrink and relieve pressure that her vision will return and lessen the risk of the left eye also being affected. And so tonight the good doctor will study up and determine which chemotherapy drugs to start her on tomorrow as different combos may be more effective.
We are taking this all in stride and are anxious to start chemo tomorrow. We know that her body has been responding well to the chemo thus far based on her pain level and the routine tests that indicate a lower rate than when we first got here 3 weeks ago. Why the cancer/tumor in her head region hasn't responded is a good question and a bit baffling to the professionals. I'm beginning to realize that with the ups and downs we are experiencing this year, or whatever it ends up being--- time is going to go very quickly!
Clara is such a good little patient and I am so proud of her. She is enduring so much and it doesn't seem to phase her. I'm drawing much strength from her. It is impossible to be down when she's so upbeat, happy and gracious (except of course when the pain isn't under control).
I am so grateful, more than I can convey that Brian and I are blessed to have supportive parents who have been willing to step in and help to run the house while I am away. For me that is one of the hardest things to be away from home, not doing the things mothers do day in and day out. You almost don't realize how much you'd miss it till you can't do it anymore. I try not to worry, but it is a natural instinct I think. My kids are lucky to have BOTH sets of grandparents to look after and care for them and assist their dad. And Brian and I are lucky. So lucky to have them.
This scripture has been in my mind constantly. I believe it encompasses what I need to do every day and really the perfect prescription for enduring any trial we experience in life.
Wherefore, ye must press forward with a steadfastness in Christ, having a perfect brightness of hope, and a love of God and of all men. Wherefore, if ye shall press forward, feasting upon the word of Christ, and endure to the end, behold, thus saith the Father: Ye shall have eternal life.
|Grandparents Woodward served as proxy parents and took Kate to her ballet recital on Friday.|
Her first one, I missed it :(