If there's one perk to this place it's the open air balcony with a view.
If you want to know some of the ways your prayers have been answered keep reading.
With the cancer growth Clara has around her sphenoid bone and optical nerve, vision loss has been a concern. This is why they quickly treated her with 3 radiation treatments on and around those regions to halt cancer growth and hopefully preserve her vision. For the last week and a half we've been careful to note any irregularities. Up until a couple of days ago everything seemed fine then we started to notice her eyes weren't tracking together, sporadically. This morning during the rounds the on-call doctor noticed this issue and ordered a CT scan immediately.
There was no time for sedation as had been done before so they were just going to use Versed. When we got to the scan room I suggested that we try it without Versed since she has had adverse reactions to it in the past. The ultimate comfort for Clara when all else fails is simply gripping the finger of Brian or I. They laid her on the table and got her situated for the scan. She remained calm and kept a tight grip on my finger while they got everything into position. It is a bit scary for a two year old to have her head sandwiched between supports and have a big machine making sounds similar to a plane taking off surround her head. As she started to get a little uneasy, I started to sing her some of her favorite primary songs. For 10 minutes while they got the images they needed she lay perfectly still! Needing only my finger and my imperfect singing voice. Really a miracle! She wowed all of the people who were behind the glass windows and they praised her perfect behavior. And then I learned that Clara wasn't the only one who could hear me sing. A little embarrassing? Yes! But, even still, worth it. So proud of her!
More good news: The CT scans shows improvement since her last one 1 1/2 weeks ago! They think the reason she is having some eye issues is because they were starting to decrease her steroid dosage and she probably still has some swelling because of the radiation. So, they are upping the dosage again. If her doctor wants to get a more accurate look she may have an MRI in the morning.
I don't know what else to say, but...thank you, for your prayers, faith, hope and charity.