|During transfusion...the chocolate chip cookie was just what she needed ... for lunch :)|
During our visit with her oncologist he verified that she wasn't taking any medications. "None," I affirmed. "Not even the Sceptra?" he asked. "Nope." and then it dawned on the she is suppose to take the Sceptra, a weekend antibiotic twice on Saturdays and Sundays. I totally blew it this past weekend. He reassured me that "these things happen." He asked how she was feeling, how her energy level was. "Oh she is doing great! She is climbing on the playset, jumping on the trampoline...." It was then I noticed his startled expression and he informed me he wasn't suppose to be hearing those activities performed by a little girl who has such low platelet numbers. I think that was strike 2 for us. Well, now we know. But I really had no idea we were suppose to be so careful! It's impossible to keep Clara from playing when she feels like it. It might be easier if she didn't feel like it, you know? I guess I need to adopt some helicopter parenting techniques I am not good at.
We hope that we are on target for surgery the beginning of September and head to Seattle for transplant the beginning of October, but we know how timing can change. I think that with this schedule the boys will start school back home, even though they don't want to. The time after surgery we were told can be demanding. They will go with us to Seattle and the doctor told us today to expect about 3 months for that ordeal and then we will come back to Spokane for radiation and "other stuff" till May/June. And yes, I'm trying not to think about all of this.
Meanwhile, all of us are enjoying being together. A couple of nights ago Kate and Clara fell asleep holding hands and I couldn't keep myself from tearing up at their sweetness. It was a little sign to me that what Clara needs right now is her family to be with her. I hope these days will give her the boost she needs for the trying days she has ahead of her.