Tonight marks 7 weeks since the beginning of Clara's fight. So far, she's winning. Clara has come so far in the last 7 weeks it's incredible. Today, as Brian and I were watching her run and play with her siblings around the hospital we both agreed that she looks and acts like she's all better and we should be able to take her home forever. If only...
The challenge this week is keeping Clara content tethered to her IV pole. The hour I've begged to keep her unhooked proves to be the happiest and fastest part of our day. She has been feeling much better than expected with this 3rd round of chemo. She just has a few sick moments each morning and then she is good to go! And that's exactly what she wants to be doing---going. We are so grateful she has that desire and ability at this point. I'm savoring these good days because I know they won't always be around.
|Our Lybbert fan club, just missing Clara and I|
Clara and I looked at every picture from the Hope for Clara 5k on Saturday. She loves the pictures just as much as I do. I shed many tears seeing the faces of so many who walked and ran in honor of Clara. Your support does more for Brian and I than you will ever know.
This evening while she was still unhooked before we sent off Brian and the kids she ran onto the elevator after someone got off. She was determined to push the button and go down the elevator to the car and didn't want me anywhere near her. Maybe she thinks I'm holding her captive. She put up an impressive toddler fight when I picked her up and brought her back to the room. The whole floor know how mad she was. Yes, she is definitely feeling better!
Since tonight is Clara's last dose of chemo the plan all along was for her to be discharged Monday. The only problem is, she isn't eating. At all. Besides the handful of blueberries she had today she hasn't eaten for several days. Her beloved sippy cup of milk that has always pulled us through is being refused. Tonight she took a sip and said, "Milk is gross!" She's thriving on IV fluids because she's maintaining her weight. Tomorrow morning the doctor decided to take her off of the fluids to see if she will have a desire to eat and drink. Hopefully her appetite comes back so we can be out of here until the next go round at the end of the month. Afterall, home is the best place to heal.