Wednesday, August 31, 2011

Limbo

I really love this picture of her and her favorite musician Terry, during her last stay in the hospital.

No news isn't always good news. Sometimes it means I just don't know what to say or how to say it. We got the results from the CT scan Clara had on Monday and in a word it was frustrating, yet a reality we knew we might face given the extent of the disease. The abdominal tumor hasn't changed since the initial scan she had when first diagnosed. The head tumor decreased 3mm, possibly a result of the radiation treatments she received. Given this disappointment we recognize the miracle that despite no shrinkage she is feeling so much better than she did 3 months ago. We haven't lost hope. Maybe this last round of chemo she had will do the trick. We are in limbo till Friday when we will talk to the doctors to get an idea on where we go from here. Chances are she won't have surgery on Tuesday as we had tentatively planned on. We are learning to thrive (somewhat) on living in limbo.

In the meantime she is out of the hospital and doing pretty well. Every night I hook her up to an IV so she can get fluids since she isn't eating/drinking enough to sustain her. The anti-nausea med she is on is so much better so at least her nausea is under control. I'm definitely counting the new med and home IV's as blessings! 


“Trust in the Lord with all thine heart; and lean not unto thine own understanding.

“In all thy ways acknowledge him, and he shall direct thy paths” (Prov. 3:5–6).

In other news, our 3 boys started school yesterday. My heart ached not being able to be there, but Brian did a good job covering the mom duties. Definite "Father of the Year"...now if only he could coach them in taking less awkward pictures :)



After school pictures, maybe that's why they weren't as cooperative...we'll go with that.

8 comments:

Jodi said...

First, LOVE the back to school pictures!! Totally what was going on at our house too. lol Looks like they're ready to go - can't wait for Kate in preschool. Second, I just want to say I think your family is amazing with taking news in stride. You are truly inspiring. All the prayers that are being said for you and your family and your trust in the Lord is why Clara's feeling so much better despite the news you got. Stay strong!!

Shannon Low said...

Clara dancing on the bed is priceless!

Anonymous said...

That is such a great picture of Clara. You have captured some wonderful moments of her in this experience. Sorry the news wasn't better. Keep being strong. You guys are an incredible example! love, daishan

Thomasene said...

Standing on the pillow, blanket and bed dancing and not falling, talented girl. I love the picture.

rip said...

I am sorry you didn't get the news you wanted. We will keep praying for better news. I am glad she is still dancing and smiling!

Ashley said...

Good job Brian, the kids all look great for their first day! :) Clara is just taking her time healing cause she's loving all the attention she's getting! You're in our prayers constantly, Taya even reminds me if I've gotten not even half way through our prayers and haven't blessed her yet. We love you so much and soooo soo much admire you for your strength!

Emily Ferrell said...

Why is it that Chandler is the one who is having the hardest time cooperating when he is the oldest and Kate who is the youngest is smiling so cute?! Brian you are awesome and Natasha you are one of my heroes. Keep taking it one minute at a time. You have so many people who love you and are praying for you.

Dlovesocks said...

Natasha, my heart hurts for you. Mother to mother. A bunch of us went to the temple last night. As I was putting your names on the temple roll, I thought, I wonder how many times her/your names have been on here. And how many just in one day or one session. You've got to know you have more prayers being offered in Clara's behalf than you could count. Hang in there. Your strength gives me strength!