Saturday, August 13, 2011

Still here





We had hoped Clara would be released today, but the pain has persisted as well as her refusal to eat and drink anything. She is dependent upon the IV fluids and nutrition and continuous pain med she has been on for the last 10 days. The trial of weaning her off of everything today proved to be premature. So tomorrow we will try again. Round 5 of chemo begins on Wednesday and we are hoping that she can get a hospital break for a few days before she has to come back. Oh, how we all need a break!

Clara is noticeably weary of everything right now. Does she even remember what life was like before neuroblastoma, chemo and hospital stays invaded her toddler world? Everyday I long for that old life to come back to her. Soon enough we will return to that old life--- in our house, on our street, together again without another hospital visit looming over our heads. That is why I look forward to each new day. Clara is that much closer to home.

11 comments:

Linda said...

More prayers for you all! Love you so much!!!!

Chelsea said...

We all long for that life again for Clara and your family too. We miss you guys so much. As sad as this picture is, I'm so happy to see her out of her bed. Love you.
Chelsea

Candace said...

Praying you guys can have a break from the hospital soon. Clara will pull through like she always does. Love you.

AmyDane Designs said...

She is such a trooper. Our prayers are with her, you and your whole family. Amy

Krista said...

Oh what is she thinking? This picture makes me so sad for her. You are all weary of this and we are so in awe of your strength and faith. We love and miss you all.

LKP said...

sending more prayers.

Kay Graham said...

Thank you for keeping up your blog. I check every day to see how you and Clara are doing. My thoughts and prayers are with you both.

debsters said...

Our prayers are constantly with you sweet Clara.
We love you!!

Jami said...

I can't wait for the day when Clara can return to the old toddler life. She has definitely been through more than most of us adults and could sure use a break. We love you guys and pray for you all!

VanessaSmith said...

I hope your sweet Clara feels better soon. You are all in our prayers.

Cajsa said...

We hope and pray that things will get to "normal" soon and that she gets a nice break from her hospital stay.