We had hoped Clara would be released today, but the pain has persisted as well as her refusal to eat and drink anything. She is dependent upon the IV fluids and nutrition and continuous pain med she has been on for the last 10 days. The trial of weaning her off of everything today proved to be premature. So tomorrow we will try again. Round 5 of chemo begins on Wednesday and we are hoping that she can get a hospital break for a few days before she has to come back. Oh, how we all need a break!
Clara is noticeably weary of everything right now. Does she even remember what life was like before neuroblastoma, chemo and hospital stays invaded her toddler world? Everyday I long for that old life to come back to her. Soon enough we will return to that old life--- in our house, on our street, together again without another hospital visit looming over our heads. That is why I look forward to each new day. Clara is that much closer to home.